Sunday, 17 February 2008

californias changing diagnostic_20



California's changing diagnostic practices

Looks like people have been comparing oranges and sheep again.

Further Commentary on the Debate

Regarding Increase in Autism in California

Journal of Autism and Developmental Disorders, Vol. 34, No. 1,

February 2004

I have followed with interest the exchanges between Blaxill,

Baskin, and Spitzer (JADD 2002), Croen et al. (JADD 2002), and

Croen and Grether (JADD 2003) regarding the suggestion of Croen et

al. that the purported dramatic increase in autism in California is

a function of changing diagnostic practices with respect to mental

retardation (MR). These authors would be wise to turn their

attention to what appear to be changing diagnostic practices with

respect to children who are not mentally retarded, especially among

school-age children.The California Department of Developmental

Services (April 2003) reports that the proportion of "higher

functioning" children among the autism population has substantially

increased and is on the rise,with a steady decline in the

proportion of persons with autism who also have MR.

The California statistics are based solely on the population served

by the state's regional centers, which coordinate services for

persons with developmental disabilities. To many clinicians, it

appears that more and more children who, in the past, would never

have been referred to the regional centers-for example, bright but

anxious and slightly socially inept kids with average or better IQs

and children who, in the past, had been or would have been

diagnosed as ADHD, OCD, ODD, anxiety disorder, learning

disabilities, psychotic, and so forth--are now being diagnosed with

high-functioning autism and/or Asperger syndrome and referred to

the regional centers for services. If children with these other

diagnoses"really" had been autistic all along, then they are not

contributing any "real "increase to autism.

If they are not "really" autistic, they have been so diagnosed at a

time when there is heightened vigilance for possible signs of the

disorder on the part of parents, teachers, and clinicians, but

limited availability of assessors with the knowledge of autism and

diagnostic skills necessary to interpret these signs accurately.

As well, in diagnosing"autistic features"in children with normal

intelligence, some clinicians are inclined to give a diagnosis of

autism disorder, rather than a diagnosis of Asperger or PDD-NOS,

because it will qualify the child for more services in California

than these other DSM-IV developmental disorders.

The M.I.N.D. Institute in California claims that misdiagnosis or

changing diagnostic practices cannot account for the increase

inautism,

citing the finding in their epidemiological pilot study that about

88% of the parents of their sample of 351 regional center children,

previously diagnosed as autistic, had responded to the Autistic

Diagnostic Interview in away that supported their child's diagnosis

of autism.

However, the response rate for voluntary participation

in the study was only about

20%.

There is no way of evaluating whether concern about

revisiting a previously given diagnosis

(e.g., for fear of losing regional center eligibility)

was among the selection factors

accounting for the 80% refusal to participate

or whether

acceptance of a previously given diagnosis

had colored the perceptions

and reporting

of at least some of the parents who had agreed to participate.

The California Department of Developmental Services speculates that

one reason for the higher proportion of cases with autism

without mental retardation

may be "the possible recognition of a new phenotype(s) of autism."

Is it the emergence on the scene of a new "phenotype" or merely

changing diagnosis of children previously given

other diagnoses or even never diagnosed at all? The California

Department of Developmental Services has

now established best practice guidelines for screening for, and

diagnosis and assessment of, autism (California Department of

Developmental Services, 2002). The Autistic Spectrum Disorder

Learning Collaborative Project in California is working toward

developing uniform assessment practices throughout the state in

keeping with these best practices guidelines.

Meanwhile, it appears that the autism diagnosis

is being stretched to include an

ever-widening range of clinical presentations,

not just among children with limited cognitive resources,

but among children with normal or above average intelligence as

well ... .

Rita S. Eagle, Ph.D. Harbor Regional Center Torrance, California

...

Comparing oranges and sheep is an expression that was used by Dr.

Fombonne in an interview to explain the way people compare old

"autism" numbers with new "autism" numbers. Comparing the old sheep

numbers with the new oranges numbers has enabled various pressure

groups to force their idea of an autism epidemic into the public's

mind, and of course, some of these pressure groups are forcing mercury

in there as the cause for this non-existant epidemic.

Doing so helps them with their lawsuits against the US vaccine program

and it helps line the pockets of the quacks.

Autism Diva

a changing

posted by Autism Diva at 11:45 PM

13 Comments:

Blogger Ed in Colorado said...

I keep hearing that the epidemic is simply a matter of new

diagnostics. But that would mean that there has been no change

in the population, no increase in the number of LFA, HFA,

aspergers, PDD-NOS people. The people who are 50 have the same

rate of autistics as the people who are 40 and people who are

30 and the children in school today. Where are they?

If the rates are the same, then 1/166 people 50 and older

should fit one of the autistic criteria. Where are they?

Have you ever dealt with the issues of autism, even in its

mildest form? If 40-50 years ago, 1/166 children showed the

symptoms of autism, it would have been big news. 40 years ago,

we never heard of children who slept for 4 hours each night. We

never heard of children who could not look you in the eye. We

never heard of children who could not stand to be touched or

who could not talk or who would jump through their skins when

they heard bubble wrap being popped. We never heard of children

who would sit in the corner away from other children humming to

themselves.

Unless and until "Where are they" is answered, the changes in

the diagnostics are irrelevant. The epidemic exists.

5:23 PM

Blogger Autism Diva said...

I discovered I was autistic at 41.

Not Autism Diva. She discovered she had Asperger's at 44.

7:06 PM

Blogger Autism Diva said...

Ed,

If you are going to start with the assumption that autism is

new and it couldn't possibly have existed before at much of a

rate, until 1990. Then that is what you will see.

The definition of autism is just now getting around to

everyone. When Rain man came out most people thought autistic

was "artistic".

Then they thought that all autistics were exactly like Rain

man, Raymond Babbit.

In that movie he's not the only autistic in the hospital by the

way, they filmed some genuine autistic people in the day room

that was supposed to be where Raymond was.

One of them was Bernie Rimland's son, Mark.

But there were others.

Of course, that's Hollywood, but how hard was it for them to

find the extras? Makes one wonder.

Autism was once called "childhood schizophrenia". So today some

of the autistic children of the 1960's are still carrying the

label of schizophrenic.

That's the truth. Schizophrenics are supposed to comprise 1% of

the population. How many autitistics could hide in that huge

body of people?

Lots.

Then there's the problem of suicide and murder. Autistics are

prone to depression and innocent, easy to kill because no one

really cares about lots of them.

Then there are those that are locked up as criminals because

they got in with bad people or were framed or were in the wrong

place at the wrong time and confessed to doing something they

didn't do.

Autism Diva knows that there were always 1 in 166 people on the

spectrum, but more has to be done in the way of looking for

these people.

If no one looks, no one will find them.

And denying their existence is criminal. It's one of David

Kirby's and SAFE MINDS' worst crimes. He laughs and says that

there are so few autistic adults that they are hardly worth

noticing... it's the children the children the mercury poisoned

children... forget the adults rotting in institutions because

no one taught them how to speak or communicated with pictures

or computers.

Besides all that the "Geek syndrome" theory makes perfect

sense. It's not proven, but it's not disproven, either. Have

you looked at the size of some of the mercury parent's heads??

That's not a joke, it's a huge clue. No pun intented. Wide set

eyes, huge heads. Strabismus, small feet, large hands, a

specific pattern of fingerprints and palm prints. Increased

head growth in toddlerhood. Posteriorly rotated ears, no

earlobes, flattened malar area, puffy face, slack face muscles.

Hyperflexibility and low muscle tone.

That's genetics. And those traits are common in autism. They

don't cover all the kids but they cover plenty of them,

including some of the kids who are supposed to be mercury

poisoned.

7:21 PM

Blogger Autism Diva said...

Ed, Autism Diva forgot to answer your question.

Autism Diva has an autism spectrum disorder, Asperger's

syndrome. She also has a child who is more like "middle

functioning" autistic. That child was and is not "nonverbal",

but has serious "challenges".

Autism Diva has family members who are older than Autism Diva

(in her family and in her ex-husband's family) who are

obviously on the autism spectrum.

The 1 in 166 is heavily weighted away from the "classic"

autism, if you call "classic" autism something like a person

who never ever interacts with anyone, who only ever sits in a

corner and rocks. (Actually, that's probably a smart autistic

who has been abused, more than a "classic" autistic person.)

It's apples and sheep. The old way of counting the numbers

would only count a tiny proportion of the current population.

You can't have it both ways.

There has been no autism epidemic. It's a lie. Show us the

numbers that show it's there.

10:08 AM

Blogger Ed in Colorado said...

Several points:

1. If you want to say that there is an autistic gene, I will

stipulate that for you. I see it in my own family - HFA son,

Aspie nephew, Aspie niece all grew up in different sections of

the country.

2. Schizophrenic does not equal autistic. Autism has a

smorgasbord of symptoms and some of them will cross into the

symptoms that are seen in schizophrenia. Your claim that

autistics hid in the schizophrenic population is only a nice

theory.

3. If there is an epidemic, it did not happen through genetics.

Something in the environment is involved. If something in the

environment is involved then it has to fit the geography and

the time period of the epidemic. Since that would point to

vaccines, there can't be an epidemic - impeccable logic.

4. Aspies can escape diagnostics. Autistics can't. Not even

HFA. The symptoms are too severe to be ignored or written off

as something else.

5. Where are the autistics? If they are in jail, then we should

be able to find them. Suicide is not sufficient to explain the

lack of autistics in the population. If they did commit suicide

then there should be a record of their autistic existence.

Where are they?

6. The genetic aspect indicates a susceptibility while the

epidemic indicates that there is a trigger of some sort.

Obviously, such observations need to be researched. It will not

happen when the head of the IOM has declared that there is no

autism-vaccine connection and we will not waste our time

researching it.

7. My state senator told me that the added cost per year for

children on the autistic spectrum is $15000/year on average.

That is on top of what parents and insurance spend. At the

state legislative level they see what I see. Even a small

chance of a connection makes it worthwhile to ban thimerosal in

vaccines.

8. Even if I am wrong about the autism-mercury connection, I

cannot see the value of injecting 6 pound babies with a mercury

preservative when vaccines can be made without it. The fact

that vaccines do not have to have thimerosal makes it

ridiculous to put it in.

9. Have you ever wondered about the autistic progression? LFA

to HFA to PDD-NOS to Aspergers to ADD/ADHD? Have you ever

wondered about the cross-over in symptoms among these

diagnoses? Have you noticed that it is truly a smorgasbord of

symptoms where one will get a little of this and a lot of that

which is completely different from the next one? Whatever the

cause, it has to cover this smorgasbord. Under the right

conditions, mercury covers this smorgasbord aspect. Other heavy

metals can as well. The medical community has no other

explanation and will not look at the one in front of their

eyes.

10:34 AM

Blogger Autism Diva said...

Ed,

Autism Diva has been having a long series of email exchanges

with Ashleigh Anderson, a pro thimerosal causes mercury

parent... and is otherwise extremely loaded down with tasks,

Forgive Autism Diva for not answering all your points right

now.

But here's a suicide for you. Undiagnosed until after his

death.

http://brainbank.org/index2.html

A Tragic Opportunity

It couldn't be! It was virtually impossible, wasn't it? After

years and years of bewilderment and endless searching to figure

out what had robbed his son, Greg, of the ability to

communicate and relate to others normally, David Garness

realized he had finally found the answer. He frantically

summoned his wife, Shirley, to the living room.

As he continued to thumb through a February 2000 issue of

Scientific American magazine, a cold sweat crept over him as

the realization sunk in.

When Shirley entered the room, David held up the magazine that

finally held the key to all the years of confusion and pointed

to an article entitled "The Early Origins of Autism" by Dr.

Patricia Rodier. Suddenly, all the difficulties of the past 31

years flooded his mind like water breaking through a dam. He

finally knew the answers to the many questions that had haunted

him and his wife for so many decades. Their son Greg, now an

adult in his thirties, was no longer an enigma. For the first

time, David and Shirley Garness finally understood the cause of

their son's often unusual and isolating behavior.

Unfortunately, the answers came too late for Greg Paul Garness

and his family. The realization that Greg had autism didn't

come in time to invoke the community supports that Greg needed

to save him. Instead, in mid-April of the same year, an event

which forever changed the lives of Greg and the Garness family

came to pass.

April 17th, 2000 had great meaning in the mind of Greg Garness.

The calendar where he diligently kept and chronicled the

weather contained an unusual entry. Written squarely across the

top in a heavy rough scrawl, Greg noted "Liz Breakup". Across

the bottom of the date he wrote "Judgment Day". The next day,

however, ten years after the breakup of his only truly romantic

relationship, Greg Garness lay dead in the middle of a busy

Anchorage, Alaska intersection. He was shot by police who were

seemingly given no alternative but to end his life.

The events of that day left many unanswered questions not only

for the Garness family, but also for the community that

considered Greg peculiar due to his social isolation and, at

times, eccentric behavior. However, the events of April 18th

may also some day result in providing solutions for others

affected by autism. It may even be the day that establishes

explanations for researchers about the many unknown facets of

the puzzling disorder of autism.

After the tragic end to their son's life, Shirley and David

Garness truly realized that Greg had a disorder that drove him

to react the way he had. They also recognized that autism was

the reason for Greg's extreme impulsivity that day. But they

wanted their newfound knowledge to help change the lives of

others. The Garness family then made a monumental decision to

assist others affected by autism. Greg's parents decided to

participate in the Autism Tissue Program and to donate Greg's

brain tissue in order to assist with vital neurological,

developmental and genetic studies on autism.

When the Garness family contacted the Autism Tissue Program,

the first step was to determine whether or not Greg truly had

autism. The determination of an autism diagnosis was made using

the ADI-R (Autism Diagnostic Interview--Revised). Throughout

the interview, the Garness family related a great number of

examples of autistic behavior throughout Greg's life. For

example, his parents recalled him engaging in many repetitive

behaviors as a child, including continuously lining up his army

men in long rows. Greg also followed many specific routines

such as waking up and listening to the radio for specific

programs every night. Additionally, unusual sensory interests

were also related. As both a child and an adult, Greg would

fill all of the sinks and tubs in the house with water and then

stare at the water while he flapped his hands. He would engage

in this for up to an hour at a time. This behavior became so

problematic that Mr. and Mrs. Garness had to refinish their

kitchen cabinets twice due to water damage.

The Garness family also related many examples of Greg's

circumscribed interests which were evident throughout his life,

but became more intense when he became an adult. Most prominent

was his strong interest in the weather, which, according to his

parents, accounted for "90% of his conversation." For years he

had created calendars that tracked daily weather conditions. He

had also kept a journal of barometric pressure and wind-flow

patterns. Even as an adult, he insisted on watching specific

weather reports every night. Greg also insisted on organizing

certain rooms in the house. He would become quite upset and

distressed if anyone attempted to rearrange them.

After the many accounts of behavior related by the Garness

family, researchers were convinced that Greg Garness did indeed

have autism. Even though the diagnosis was made posthumously,

the Garness family was allowed to make an important donation to

research by donating tissue to The Autism Tissue Program.

One of the most necessary components of ongoing autism research

studies is The Autism Tissue Program (ATP). The program is a

joint effort of the National Alliance for Autism Research

(NAAR), the Autism Society of America Foundation (ASA), and the

M.I.N.D Institute. In 1998, the ATP initiated a national

campaign to work with advocates in ASA chapters and other

organizations by notifying potential donors and their families

of the importance of brain tissue donations.

Additionally, the program continues providing support to

families making such difficult decisions. In the past, the

sensitive nature of the subject of tissue donation often

resulted in delayed decisions by families who wanted to assist

with the program. As such, the ATP is now working much harder

to insure that individuals and their loved ones with autism can

make appropriate choices prior to a tragedy or other event

where tissue donation is an option.

Not only does the Garness family want to increase awareness of

the Autism Tissue Program, they also want to encourage

awareness of autistic spectrum disorders. They feel awareness

is the key and the most important step in understanding these

neurological disorders. Since Greg's inability to adapt drove

him to years of alcohol abuse, in hindsight his parents wonder

if addressing the real diagnosis would have changed Greg's

fate. That question may some day be answered with the results

of studies conducted by the ATP. Even though the answer will

not bring back the son who loved to fish and help in the family

business, it may eventually assist others with answers to

similar questions.

Additionally, by utilizing Greg's story, the Garness family

also hopes to bring attention to the lack of training for

"First Responder Personnel" in similar situations. "First

Responder Personnel" include police officers, firefighters, and

emergency medical technicians who need to have a better

understanding of autistic spectrum disorders. While no one will

ever know if that training might have changed the outcome that

day for Greg Garness, it might have allowed the use of

alternative procedures. Those procedures are generally not used

by police officers in circumstances such as Greg's. When Greg

walked into the busy Anchorage intersection making obscene

gestures to motorists and goading them to strike him, the

police response (had they had specific training regarding

autism) might have been quite different. First responders such

as police officers might have handled the situation in a unique

manner if they had known Greg had autism and if they had

received specialized training to help them deal with

individuals affected by autism.

Since officers in Anchorage had not received any specialized

training, it is possible that police felt they were dealing

with a dangerous offender that day. Greg did have a history of

prior negative contacts with the police. He had attempted

suicide in 1998 and had also previously assaulted an officer.

However, the Garness family questions how much the interaction

with the police on that particular day influenced Greg's

reactions and the officer's response. Records indicate that

police were aware that a person was acting strangely; however,

the Garness family feels that trained professionals would have

been on guard in such a situation. Unfortunately, officers

approached Greg and when they requested identification from

him, he began to threaten them. The confrontation ended when

Greg stood on top of the patrol vehicle, waving a gun

erratically. When he didn't respond to a verbal request to drop

the weapon and instead leveled the gun at officers, police had

no choice but to use deadly force.

Although Shirley and David Garness will probably never have all

of their questions answered regarding their son's tragic death,

their participation in the Autism Tissue Program as well as

sharing their story with others is an attempt to make a

positive impact out of a tragedy. They hope their story will

encourage others to participate in research programs. They also

wish to greatly increase the public's awareness of autistic

spectrum disorders. The Garness family continues to pray that

this tragic event in their lives will remain an opportunity to

assist many others.

Written by Marianna Bond, Chapter President of the Autism

Society of Greater Tarrant County in Texas with Carolyn

Gammicchia, Chapter Vice-President of the Autism Society of

Macomb and St. Clair Counties in Michigan.

--------

You have some kind of idealized way of looking at the mental

health care system.

The definition of schizophrenia can be used to describe

autistics, IF the clinician thinks, for example that person's

constant talking to himself is the cardinal and unquestionable

sign that the person is hearing voices.

"Autism" was first used to describe a behavior in

schizophrenics. I'm sorry Ed, but duh. You need to study the

history of psychology to see how stupid diagnosticians are.

Amanda Baggs who is unquestionably autistic has been labelled

as schizophrenic. And she's the same age as Autism Diva's

child. Autism Diva's child talks to xyrself all the time, by

the way. Autism Diva talks to herself, too, and gestures. Like

an insane person who hears voices might. But Autism Diva isn't

hearing voices, she's talking to herself and replaying

conversations and rehearsing for an upcoming conversation.

That's classic autism.

There has been no epidemic. NO way no how. Autism Diva won't

stipulate to it.

There are plenty of genes that have been identified as being

more common among familes of autistics. Those things code for

things like big heads and wide spaced eyes, large hands, small

feet.... Look at Rollins head! For crying out loud. He looks

just like Atuism Diva's father, as does Scott Bono.

give a Diva a break. These people are loaded with classic

autism genes and are pointing the finger at mercury, and no one

is allowed to point that out.

Ever seen Sallie Bernard's son? Big head, wide spaced eyes.

And his mom is in denial.

Autism Diva is not supposed to point that out, but there it is.

Immutable. These kids look autistic, they don't look mercury

poisoned. They aren't mercury poisoned, they are autistic.

1:23 PM

Blogger Ed in Colorado said...

"If you are going to start with the assumption that autism is

new and it couldn't possibly have existed before at much of a

rate, until 1990. Then that is what you will see."

Likewise, if you are going to start with the assumption that

autism has never changed, then that is what you will see. You

mentioned suicide and jail as places where the older autistics

could hide. Where is that count?

"That's the truth. Schizophrenics are supposed to comprise 1%

of the population. How many autitistics could hide in that huge

body of people?

Lots."

That would imply that with the growth of the autistic

population, the schizophrenic population would go down. Then

there would be no 1% of the population that is schizophrenic.

But seriously, the genetics of autism are not denied by the

anti-mercury crowd. We see the genes as the thing that leaves

the autistic vulnerable to the environmental trigger.

There are video tapes of autistic children before and after

vaccines. They are stunning. But if you start with the

assumption that vaccines can't cause autism, then there can't

be an epidemic.

3:53 PM

Blogger Chris said...

Breaking away for a moment from the epidemic argument to the

intelligence argument, I think that introducing ID stats to

balance autism stats is going from mist to fog. ID and autism

both have misleading clumping of many disorders under one head,

have fuzzy edges that depend on care, cost, fashion, and habit,

have enormous backlogs of dumb-as-fenceposts journal articles,

and have deep conceptual problems. You end up with two unknown

variables instead of one.

It's possible that there is only one population, made up

largely of people with speech-motor handicap, but that's quite

another argument.

And as to the issue of age, remember that for the first ? ten ?

years of autism there were no adults; it was 'infantile autism'

and anybody older didn't fit, by definition. And the really odd

thing is that Kanner didn't seem at the time to see the need to

ask what happened to these children when they grew up.

9:03 PM

Blogger Autism Diva said...

Chris,

Is ID the same as the old term "MR"?

You make a good point. People seem to think that everyone who

gets the autism label is "obviously autistic". Lots of times a

kid is just a question mark, look at the boy with the newly

diagnosed disorder. He can't talk, but he's not necessarily low

IQ, and not autistic, but for some reason he was labelled that

for a while. How he got "Tourette's" as a label is a mystery...

The thing is that say one could go back in time and give the

proper tests to all living people, so that anyone who seems

vaguely autistic was given a real professional work-up with the

ADOS or ADIR (two diagnositic tools) for example...

Today, the ones who would have come in as ASD by the tests as

children, would be found in many situations.

Some would have died, lots of people die, but probably more

autistics die from suicide and murder than the average

person... logically. Maybe more die from accidents, than

average, but maybe less .... hard to say.

Then if they don't get good teaching, and people think that

because they don't talk that they are not worth teaching...

they might be labelled low IQ or MR. They might be housed with

other MR people in community homes or in larger institutions

with the MR label.

If they could talk they might be in jail, because we tend to be

gullible, not because we tend to be criminal.

Some are professors, even ones who were late talkers, and

therefore "autistic" not "Asperger's", Michelle Dawson is a

good example of someone who was a late talker, but now has good

prosody and certainly above normal intelligence. She used to

blend in pretty well with normal people, well sort of. She has

had jobs doing the same things that normal people do, and she

can drive a car, just fine.

Frank Klein, also, someone who blends in not too badly, has had

work, graduated from High School, drives a car... was

"classically autistic" as a kid.

Some of the adults will be homeless people. Many will live with

their parents, until their parents die.

Some will have been diagnosed (this is a fact, Ed, it has

happened many times) schizophrenic. Amanda Baggs is an example

of that. If not schizophrenic, then schizoid and the other

schiz___ diagnoses can be misapplied to autistics.

If one takes all of the autistics out of the schizophrenic

group, which is huge, 1% of the whole world's population... it

isn't going to put that much of a dent in the schizophrenic

population, because the autsitics labelled as sz are a minority

of the sz population.

It is also possible that there were fewer autistics per capita

70 years ago because of societal pressures that made it harder,

but not impossible, for odd people to have children.

12:34 AM

Blogger Fuzzy Logic said...

Ed asks: "If the rates are the same, then 1/166 people 50 and

older should fit one of the autistic criteria. Where are they?"

1. There are people in that age range in adult programs (such

as Eden in NJ).

2. It is possible that the life expectancy of people with

autism was much lower, and that they never made it to 50 and

older. One veteran professional told me that the practice of

institutionalizing people with autism and medicating them led

many of them to choke on food and die prematurely.

8:10 AM

Blogger Ed in Colorado said...

I find it interesting that you should mention the genetics

aspect, Diva. Is the idea of genetics and environment both

playing a role out of the question for you?

7:32 PM

Blogger Autism Diva said...

Genetics is a huge concept, a huge field of inquiry.

A single gene can code for totally different things, so is

there a gene that codes for extra small "minicolumns" in the

cortexes (cortices?) of autistics and does that gene also code

for intestinal problems? Autism Diva has no idea.

So far they are looking at genes that tell the brain how to get

built, for instance the HOXA 1 gene, and the REELN gene. There

are other suspect regions on chromosomes that have been

identified as showing up different in families of atuistics,

but the exact genes in those regions have not been identified.

It's sort of a "needle in a haystack" process of identifying

actual genes and matching them up with what proteins the gene

codes for and what those proteins do and when.

If someone finds a gene that is present in all the kids that

got exposed to thimerosal and regressed, and that gene is not

present in other kids. Well, then you'd have something, so long

as you could tie it to something about mercury AND so long as

you could show that the kids brains were normal before the

exposure, that the mercury did what mercury can do at high

enough concentrations (destroy nerve cells).

But so far, what we see is that autistic kids have brains that

were set as autistic brains from the embryonic stage, and that

seems to be just genetic, without any dependancy on am outside

chemical trigger.

CAN is funding a huge search for autism genes, if they find

genes that autistic kids have, then they find out what those

genes do, then maybe they'll find your magic mercury

susceptibility gene. It just doesn't seem very likely that such

a gene or genes exist, and if it does it will be in a tiny

minority, and they won't be the cause of an "epidemic", because

there hasn't been an "epidemic".

8:16 PM

Blogger Kev said...

Ed said:

But seriously, the genetics of autism are not denied by the

anti-mercury crowd. We see the genes as the thing that leaves

the autistic vulnerable to the environmental trigger.

I have a particular beef with Generation Rescue who claim

exactly what you say you don't:

There is no evidence to suggest that autism is genetic. No

autism gene has ever been found and the search will be endless

- how can you have a gene for a mythical condition? Autism is

mercury poisoning

So I'm afraid Ed that there is serious upward scale,

politically motivated support for the idea that all autism both

now and historically is solely mercury poisoning.

To tackle your wider point of where are the adult autistics:

I recently wrote a post that covered that very subject. In

Scotland (the UK has a near identical prevalence rate to the

US)a 2004 report audited the state of autism in Scotland. There

was space at the end for each reporting body (Health

authorities, NHS units etc) to leave comments. Nearly half

expressed their belief that autism amongst adults was severely

under diagnosed.

Autistic adults are out there Ed. Always have been.

9:59 AM

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